Epileptic boy, whose medicinal cannabis was seized is in a life threatening condition' after suffering seizures

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KeyMonCha
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Epileptic boy, whose medicinal cannabis was seized is in a life threatening condition' after suffering seizures

Post by KeyMonCha »

http://www.dailymail.co.uk/news/article ... ition.html

Forget about the hypocrisy of being a, if not 'The' primary exporter of medicinal hemp in the world, yet declaring cannabis to posses 'no medicinal value'; but to actively withhold the medicine from the mother, knowing full well you were resigning a child to suffer and possibly die thanks to draconian policies, is just fucking immoral!

https://metro.co.uk/2018/06/15/epilepti ... n-7635608/
(Metro link for those who won't touch The Mail... I understand.)



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KeyMonCha
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Re: Epileptic boy, whose medicinal cannabis was seized is in a life threatening condition' after suffering seizures

Post by KeyMonCha »

Epileptic boy will have supply returned

https://www.bbc.co.uk/news/uk-44507135

Give it to him as quickly as possible to avoid a possible national debate, or worse, if he had died...

...Anyway, it seems this one case might have a happy ending!

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Fat_old_dwarf
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Re: Epileptic boy, whose medicinal cannabis was seized is in a life threatening condition' after suffering seizures

Post by Fat_old_dwarf »

Strictly speaking, as far as I'm aware the medical cannabis the UK produces has no or negligible THC content, and that doesn't work with this lad. I might be wrong, as I find the entire topic too depressing to research in detail, so perhaps someone with more knowledge will comment.

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Re: Epileptic boy, whose medicinal cannabis was seized is in a life threatening condition' after suffering seizures

Post by KeyMonCha »

So, as far as i know, and i'm no expert, is that the majority of the UK export cannabis is sold as 'Sativex', which is primarily prescribed for MS sufferers, not epilepsy right now, unfortunately. According to Wikipedia, each dose of Sativex contains 2.7 mg of THC, and 2.5 mg of CBD... The Oil the kid was prescribed was 'Tilray' Oil, and according to their website their Tilray 2:100 Oil has 2 mg/ml THC and 100 mg/ml CBD...

Assuming the THC is a necessary ingredient for this medicine to have maximum effect, and that CBD is the major catalyst for the child's recovery, then i'm guessing Sativex probably wouldn't have such a miraculous impact as the Oil seems to have?!?

As far as actual figures, it's quite hard to find out exact numbers regarding the THC levels of the UK's legal grows, but i found a article with the 'director of botany' at a covert GW Pharmaceuticals facility which stated, "...around half of the 20 tonnes of dry weight cannabis grown here every year would produce no high in recreational users."

...So, in conclusion, maybe half, probably more, will get you baked!? :mrgreen:

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Willjay
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Re: Epileptic boy, whose medicinal cannabis was seized is in a life threatening condition' after suffering seizures

Post by Willjay »

https://www.cwhemp.com/

the Stanley brothers developed the strain Charlotte's Web, that has no THC at all and works GREAT for epilepsy. The video of the young patient remarkable recovery caused a surge in legal medical marijuana states in the "usa"
www.stopthedrugwar.org
www.mpp.org
www.drugpolicy.org

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Re: Epileptic boy, whose medicinal cannabis was seized is in a life threatening condition' after suffering seizures

Post by RoMoney »

The whole thing was mad, the child has a prescription for the stuff written by a doctor based in Northern Ireland where he is from. Would a doctor not be delisted for prescribing something that is technically illegal?
Bring back Imelda Marcos!

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Re: Epileptic boy, whose medicinal cannabis was seized is in a life threatening condition' after suffering seizures

Post by KeyMonCha »

RoMoney wrote:
Tue 19th Jun 2018 09:47 pm
The whole thing was mad, the child has a prescription for the stuff written by a doctor based in Northern Ireland where he is from. Would a doctor not be delisted for prescribing something that is technically illegal?
Apparently, doctors can prescribe treatments that are not available in ones own country, "...at GP's own risk".

...Makes sense, i suppose... I never bat an eyelid at someone being sent to the US for some treatment or another, that is sadly unavailable in our cash-strapped system.

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RoMoney
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Re: Epileptic boy, whose medicinal cannabis was seized is in a life threatening condition' after suffering seizures

Post by RoMoney »

KeyMonCha wrote:
Wed 20th Jun 2018 01:01 pm
RoMoney wrote:
Tue 19th Jun 2018 09:47 pm
The whole thing was mad, the child has a prescription for the stuff written by a doctor based in Northern Ireland where he is from. Would a doctor not be delisted for prescribing something that is technically illegal?
Apparently, doctors can prescribe treatments that are not available in ones own country, "...at GP's own risk".

...Makes sense, i suppose... I never bat an eyelid at someone being sent to the US for some treatment or another, that is sadly unavailable in our cash-strapped system.
That's interesting I've heard of people go to the US when treatment isn't available but usually as it requires a machine or a specialist surgeon vs requiring an illegal drug.

At least the whole case seems to have moved the debate on in the UK. In the Republic of Ireland there are now 7 licence holders for medical cannabis and it all started similarly with a sick child and a desparate mother on TV.

https://www.irishexaminer.com/breakingn ... 50128.html
Bring back Imelda Marcos!

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Re: Epileptic boy, whose medicinal cannabis was seized is in a life threatening condition' after suffering seizures

Post by notsofasteddie »

After Canada, will U.K. be next to legalize marijuana?


REUTERS
June 20, 2018, 7:20 AM


LONDON -- The British government announced Tuesday it would move to lift its ban on cannabis-based medicines, amid mounting criticism over the denial of treatment to severely epileptic children. But it rejected calls to legalize marijuana for recreational use.

Home Secretary Sajid Javid told lawmakers cases like that of a 12-year-old epileptic boy denied cannabis oil for his condition showed there is "a pressing need to allow those who might benefit from cannabis based medicines to access them."

But he said the government had "absolutely no plans" to decriminalize the drug more widely. His announcement came as Canada's Senate approved legislation that will soon decriminalize marijuana for recreational use in the North American nation.

The change in stance came after the British government relented and allowed 12-year-old Billy Caldwell to receive cannabis oil treatment that his mother said was needed to prevent life-threatening seizures.

His mother, Charlotte Caldwell, has called for the laws governing medicinal marijuana use in Britain to be liberalized, saying cannabis oil is the only treatment that has warded off her son's seizures.

Javid said Tuesday that a license to use cannabis-based drugs would also be issued for 6-year-old Alfie Dingley, whose epilepsy causes scores of seizures a day.

He said if a review by the country's chief medical officer identified cannabis-based treatments with "significant medical benefits," they would be legalized.

He said the current legal situation was "not satisfactory for the parents, not satisfactory for the doctors, and not satisfactory for me."

Charlotte Caldwell welcomed the announcement, but said she wanted to hear more details.

"Common sense and the power of mothers and fathers of sick children has bust the political process wide open and is on the verge of changing thousands of lives," she said. "We are on the threshold of the next chapter of the history books."

The cases of Billy Caldwell and other sick children have put Britain's drug laws under scrutiny. On Tuesday, former British Foreign Secretary William Hague joined a growing number of politicians and medical experts calling for the government to legalize marijuana.

The former Conservative Party leader, now a member of the House of Lords, wrote in The Daily Telegraph that the war on cannabis had been lost and that it was "deluded" to pretend otherwise.

He said "cannabis is ubiquitous, and issuing orders to the police to defeat its use is about as up-to-date and relevant as asking the Army to recover the Empire."

The Home Office said in response that "the government has no intention of reviewing the classification of cannabis under the Misuse of Drugs Act 1971 and it will remain a Class B drug" - the middle rung on a three-point scale of illegal drugs.



cbsnews

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Re: Epileptic boy, whose medicinal cannabis was seized is in a life threatening condition' after suffering seizures

Post by notsofasteddie »

notsofasteddie wrote:
Wed 20th Jun 2018 08:56 pm

LONDON -- The British government announced Tuesday it would move to lift its ban on cannabis-based medicines, amid mounting criticism over the denial of treatment to severely epileptic children. But it rejected calls to legalize marijuana for recreational use.

Home Secretary Sajid Javid told lawmakers cases like that of a 12-year-old epileptic boy denied cannabis oil for his condition showed there is "a pressing need to allow those who might benefit from cannabis based medicines to access them."

Another Epileptic Child Granted License to Use Medical Cannabis in UK

On the heels of Billy Caldwell’s victory, 6-year-old Alfie Dingley will also be allowed to resume medical marijuana treatment.


by A.J. Herrington
June 19, 2018


Image
Another Epileptic Child Granted License to Use Medical Cannabis in UK
Courtesy of Alfie's Hope Facebook page


The UK government has granted a license to use medical cannabis to another child with epilepsy. Alfie Dingley, a six-year-old from Kenilworth, England will now be able to use a medical marijuana therapy to treat his condition. The news comes after another UK boy, Billy Caldwell, received a similar license over the weekend.

Home Secretary Sajid Javid announced the decision in Parliament Tuesday. Javid also told the House of Commons that he is launching a review of the regulation of medicinal cannabis. That discussion could eventually make it easier for doctors to prescribe medical marijuana therapies in the UK.

“It has become clear to me that the position we find ourselves in currently is not satisfactory,” Javid said. “It’s not satisfactory for the parents, it’s not satisfactory for the doctors, and it’s not satisfactory for me. I have now come to the conclusion that it is time to review the scheduling of cannabis.”

Alfie has a rare form of epilepsy that can cause up to 30 seizures per day. He had been successfully using a cannabis medicine to treat his illness after the family moved to the Netherlands, where it is legal. But they had to return home when funds ran out and turned to the UK government for help.

Mum Receives News on Live TV

Alfie’s mother, Hannah Deacon, received the news of Javid’s decision on live television. During an interview about her struggle to obtain medicinal cannabis for Alfie, a reporter told Deacon that Javid had approved the license. The reporter then asked Deacon for her reaction.

“It’s amazing news, thank you very much for letting me know,” Deacon said as she began to cry.

In March, Deacon and Alfie’s father, Drew Dingley, met with UK Prime Minister Theresa May in a bid to secure a prescription for her son. During that meeting, Alfie’s parents delivered a petition with the signatures of nearly 380,000 people calling on May to grant the license. Alfie also received support from actor Sir Patrick Stewart.

After the meeting, Deacon told reporters that the government had “approved in principle” granting the license to Alfie.

“We had a positive meeting, they accept the compassionate issuing of a license for Alfie,” Deacon said.“Now we need our medical professionals to write the prescription.”

But three months later, the license still had not come through for Alfie. Before learning of Javid’s decision, Deacon shared her frustration during Tuesday’s interview.

“I met the Prime Minister on March 20 in Number 10. I appealed to her directly,” Deacon told the interviewer.

“She looked at me. She met my son and she told me that they would find a way in which our clinicians could be issued with a Schedule 1 license to give my son the medicine that he had in Holland. I believed her.”

License Is Second Granted by UK Government This Week

The UK government granted Alfie’s license to use medical cannabis only days after it did the same for Billy Caldwell. The 12-year-old had also been using cannabis to treat epilepsy. Billy was the first patient in the UK to receive a prescription for a cannabis therapy from the National Health Service. But when the government announced it what not allow any more prescriptions, Billy and his mother flew to Canada to receive more medicine.

Border officials then seized the medicine at Heathrow Airport when they returned home. The medicine was returned after a series of seizures put Billy in the hospital.

The boy has since recovered and been discharged.


hightimes

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Re: Epileptic boy, whose medicinal cannabis was seized is in a life threatening condition' after suffering seizures

Post by dantewyze »

Seriously this shit is retarded. I can't believe they would do that to a poor young boy.. What the hell did he do? Its only a given right to be able to take something that helps you come on!

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